Awareness

A Day In The Life

Imagine you're at the grocery store with a one, and almost-3-year-old.  Your one-year-old is his usual rowdy, charming, and engaging self.  He smiles, waves, and interacts with everyone and everything around him.  You catch strangers smiling and waving at him, and he does the same back. 

But, it's not the same for your 3-year-old.  Instead of smiles and waves, you sense stares and whispers.  People can see that she's far too old to still need the bib she's wearing to catch the excessive drool she likes to rub her fingers in and stare at.  When she occasionally lets out a high pitched scream, you can feel other parents looking at you and wondering why you aren't doing more to correct her behavior. 

Now your one-year-old is getting cranky and throwing things out of the cart.  While you deal with that, the three-year-old starts wildly slamming her body against the seat in the cart.  "I know," you whisper to her, pleading for her little body to calm itself, "We just need milk and then I promise we can go."

Now you're at the checkout and your body tenses as you hear the question you always dread, even though it should be so simple.  "Hi there!" the woman scanning your 5 bags of frozen ravioli (that's all the 3-year-old will eat this week) says, while smiling back at your 1-year-old, "Your kids are so cute, how old are they?".  You stare down at your items on the black conveyor belt and mumble "1, and almost 3." so you don't have to see the perplexed look on the cashier's face while she tries to figure out which is which, and why neither seem to be at a typical 3-year-old stage.  

Thankfully the 3-year-old's body seems to be seeking less input, and her self-stimulating behaviors are now mostly limited to playing with her spit and staring at the magazine rack next to her.  You breathe a sigh of relief when the cashier hands you your change without asking any more questions and you head out to your car.

This isn't my story.  I mean, parts of it are, but my reality is that I have one child and he's the typically developing charmer.  The other part of my reality is that for 45 hours a week, I am a caregiver for an almost 3-year-old girl with Autism and a rare genetic disorder called Schaaf Yang Syndrome.  I've been in her life since before she was born, and I love her fiercely, even though she's not my own.  

I can tell when she's having a "stim" day, I know when she's just avoiding her therapy rather than physically unable to participate, and I know that she is much more aware of her surroundings than she gets credit for.  I know that both she and her parents are warriors, and I wonder every day if I would have the strength to be the kind of parents that they are.

Emma is beautiful and unique and her story deserves to be heard.  I really hope that Emma Goes to School can help children learn to embrace their own unique differences, while showing the rest of the world that they deserve to be celebrated.

Kirstin (author), Emma (inspiration), Sage/Sagums (illustrator)

Kirstin (author), Emma (inspiration), Sage/Sagums (illustrator)

Kickstarter Launching May 1st!

Exciting news, our Kickstarter is launching on Monday, May 1st! Thank you so much to everyone who has taken the time to engage with us on social media, as well as supporting our cause. Now, let's make Emma Goes to School a reality!

Emma Goes to School Stickers!

We recently got our first batch of Emma Goes to School merch! We ran a contest on our Facebook and Instagram pages for a chance to win some stickers, and Emma Nelson was very excited to choose the winners. Congratulations to Brent Johnson, Josiah Sell, and Jane Kaup, and @prodoula!

Emma Goes to School Stickers
Emma Nelson picking the winners of the Emma Goes to School social media sticker giveaway contest

Emma Goes to School Supports Autism Awareness Month

In support of National Autism Awareness Month, we are very proud and excited to introduce you to Emma's friend, Jesse! Jesse is a quiet monster with a passion for all things science. Although his downcast eyes sometimes get confused with disinterest, Jesse is usually just keeping an eye out for misplaced pieces.

Illustrated by Sage "Sagums" Steiner

Illustrated by Sage "Sagums" Steiner

Introducing Sage "Sagums" Steiner, Illustrator of Emma Goes to School

Introducing a very important part of the Emma Goes to School team, our illustrator Sage "Sagums" Steiner! I was so lucky to find such a talented artist to bring my vision to life, it's hard to believe she's only 13 years old!

Introducing Sage "Sagums" Steiner, illustrator of Emma Goes to School